Thank you for being a part of
On a mission to help the Cure RTD Foundation spread awareness and find a cure for Riboflavin Transporter Deficiency.
About Us
Team Tommy for Cure RTD is a 501(c)(3) non-profit organization dedicated to supporting the Cure RTD Foundation in their mission to find a cure for Riboflavin Transporter Deficiency (RTD). RTD is a genetic, neurodegenerative, and life-shortening disease. It is also extremely rare with only about 400 people in the world with a confirmed diagnosis. Cure RTD saves lives through education, advances in treatment, and the search for a cure for RTD. Their ultimate goal is to provide a better future for those impacted by this terrible disease.
Team Tommy for Cure RTD was founded in 2023 and is based in West Chester, PA. It was formed in honor of Tommy O’Rourke, who was diagnosed with RTD in April 2022 just after his second birthday. Since Tommy’s diagnosis, Team Tommy has made it their mission to do everything in their power to make the dream of a cure for RTD into a reality. They work with the Cure RTD Foundation to spread awareness, raise funds, and continue to empower RTD families to be the best advocates for themselves and their children.
News & Updates
4th Annual Toast to a Cure
Let's do it again!
Please save the date for our annual fundraiser! This year's event will be held on
Friday, May 8, 2026 from 5:30 to 7:30 PM in the barn at 103 Blue Rock Rd. West Chester, PA 19382.
There is much more information to come. We'll never be able to express how much all of your support means to us and the RTD community. We hope to see you all there!
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