Thank you for being a part of
On a mission to help the Cure RTD Foundation spread awareness and find a cure for Riboflavin Transporter Deficiency.
About Us
Team Tommy for Cure RTD is a 501(c)(3) non-profit organization dedicated to supporting the Cure RTD Foundation in their mission to find a cure for Riboflavin Transporter Deficiency (RTD). RTD is a genetic, neurodegenerative, and life-shortening disease. It is also extremely rare with only about 400 people in the world with a confirmed diagnosis. Cure RTD saves lives through education, advances in treatment, and the search for a cure for RTD. Their ultimate goal is to provide a better future for those impacted by this terrible disease.
Team Tommy for Cure RTD was founded in 2023 and is based in West Chester, PA. It was formed in honor of Tommy O’Rourke, who was diagnosed with RTD in April 2022 just after his second birthday. Since Tommy’s diagnosis, Team Tommy has made it their mission to do everything in their power to make the dream of a cure for RTD into a reality. They work with the Cure RTD Foundation to spread awareness, raise funds, and continue to empower RTD families to be the best advocates for themselves and their children.
News & Updates
RTD Awareness Month 2026
November is Riboflavin Transporter Deficiency (RTD) Awareness Month, with November 15 marking RTD Awareness Day!
This November, we're joining the Cure RTD Foundation in a month-long campaign to raise awareness, share the stories of individuals and families affected by RTD, educate the public and medical community, and highlight the research bringing hope for the future.
Throughout the month, Cure RTD will be sharing educational posts, personal stories, videos featuring patients, families, clinicians, and researchers, and opportunities for everyone to get involved.
We would love for our Team Tommy community to join us!
Here's how you can help:
🧡 Follow Cure RTD on Instagram and/or Facebook and engage with their Awareness Month content.
💙 Share their posts and videos. Every share helps introduce RTD to someone new.
🧡 Wear orange on November 15 in honor of RTD Awareness Day! Orange is especially meaningful to our community because riboflavin (vitamin B2) is naturally bright orange. Share your photos and tag Cure RTD!
💙 Start conversations. Tell a friend, family member, or healthcare professional about RTD. You never know who might benefit from hearing about it.
🧡 Support the mission. Help advance awareness, advocacy, and research toward better treatments and, ultimately, a cure.
While we'll continue sharing updates about Tommy here and on our Team Tommy social media, much of our focus this month will be on supporting Cure RTD's awareness campaign. We encourage you to follow along with them throughout November!
To everyone who has supported Tommy and our family, thank you. Your willingness to learn, share, advocate, and stand beside us means more than we can express. 🧡💙
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