Thank you for being a part of
On a mission to help the Cure RTD Foundation spread awareness and find a cure for Riboflavin Transporter Deficiency.
About Us
Team Tommy for Cure RTD is a 501(c)(3) non-profit organization dedicated to supporting the Cure RTD Foundation in their mission to find a cure for Riboflavin Transporter Deficiency (RTD). RTD is a genetic, neurodegenerative, and life-shortening disease. It is also extremely rare with only about 400 people in the world with a confirmed diagnosis. Cure RTD saves lives through education, advances in treatment, and the search for a cure for RTD. Their ultimate goal is to provide a better future for those impacted by this terrible disease.
Team Tommy for Cure RTD was founded in 2023 and is based in West Chester, PA. It was formed in honor of Tommy O’Rourke, who was diagnosed with RTD in April 2022 just after his second birthday. Since Tommy’s diagnosis, Team Tommy has made it their mission to do everything in their power to make the dream of a cure for RTD into a reality. They work with the Cure RTD Foundation to spread awareness, raise funds, and continue to empower RTD families to be the best advocates for themselves and their children.
Upcoming Events
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Tommy's Birthday T-Shirt Sale
ONGOING! Now-March 27
Some of you have been asking for TT gear. Well, Tommy's birthday is coming up in April! Let's celebrate with a T-shirt sale for those interested! Also a great way to get excited for our annual fundraiser on May 9 :) If you place an order, your shirts are estimated to arrive by 4/16. Thank you!!
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ANNUAL FUNDRAISER
May 9th 5:30-7:30PM
103 Blue Rock Rd. West Chester, PA
Join us for an evening of fun benefiting the Cure RTD Foundation! No ticket required and all are welcome! We would love to see your little ones, but we do encourage getting a babysitter for the evening if possible as the event is geared more towards an older audience.
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Deafblind Awareness Week
June 22-28
Many individuals in the RTD community are considered to be deaf and blind. Losing the abilities to hear and see after being born with both is especially devastating for them and their families. Please consider a donation to help Cure RTD fund research that can potentially improve the lives of those struggling.
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